- Course overview
- Search within this course
- What is publicly available data?
- Data management for publicly available data
- Licences and data reuse
- Programmatic access
- Sharing your data
- Further learning
- Your feedback
- References
All materials are free cultural works licensed under a Creative Commons Attribution 4.0 International (CC BY 4.0) license, except where further licensing details are provided.
Restricted access resources
There are some data resources that will make their data available, but first you must apply for access. This is usually due to the sensitive nature of the data, for example it could be patient data, and so authorisation for access must first be given.
Some examples of such resources include:
- UK Biobank – a database and research resource, containing genetic and health information from UK participants.7
- European Genome-phenome Archive (EGA) – a service for archiving and sharing all types of personally identifiable genetic and phenotypic data.8
In these instances, there is usually very clear guidance around who can apply for access and how.
The example below (figure 3) shows the step-by-step guide to accessing data from the EGA. It is possible for anyone to view information about the datasets that are available, then once you have found a data set of interest, you can apply to the data access committee for access.9
Regardless of which data resource you get the data from, you will need to plan how you will manage the data. Continue on to the next page to learn more about data management of publicly available data.