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Human Cell Atlas Register of Interest

Privacy Notice for Human Cell Atlas Register of Interest

This Privacy Notice explains what personal data is collected by the specific service you are requesting, for what purposes, how it is processed, and how we keep it secure.

Note that this service collects personal data directly provided by the user, and also collects personal data from users that is provided by other organisations.

1. Who controls your personal data and how to contact us?

EMBL, Chan Zuckerberg Initiative, UC Santa Cruz and the Broad Institute are joint data controllers of your personal data on behalf of the Human Cell Atlas Project, an unincorporated research project without separate legal personality.

For EMBL as data controller, contact details are:

Rolf Apweiler and Ewan Birney, EMBL-EBI Directors
Email: data-controller@ebi.ac.uk
EMBL-EBI, Wellcome Genome Campus, CB10 1SD Hinxton, Cambridgeshire, UK.

The EMBL Data Protection Officer’s contact details are:

EMBL Data Protection Officer
Tel: +49 6221 387-0
Email: dpo@embl.org
EMBL Heidelberg, Meyerhofstraße 1, 69117 Heidelberg, Germany.

For the Chan Zuckerberg Initiative as data controller, contact details are:

CZI Legal
Chan Zuckerberg Initiative
Email: legal@chanzuckerberg.com
Chan Zuckerberg Initiative, 555 University Ave, Palo Alto, CA 94301, United States.

For the University of California, Santa Cruz as data controller, contact details are:

David Haussle
University of California, Santa Cruz
Email: genomics.info@ucsc.edu
UC Santa Cruz, 1156 High Street, Santa Cruz, CA 95064, United States.

For the Broad Institute as data controller, contact details are:

The Office of the Chief Compliance Officer

Broad Institute
Email: privacy@broadinstitute.org
Broad Institute, 415 Main Street, Cambridge, MA 02142, United States.

2. Which is the lawful basis for processing personal data?

We request your consent to process your personal data. If you do not consent to us processing your personal data, we will not be able to provide you access to the service or we will only provide you a subset of functionalities available within the service

3. What personal data is collected from users of the service? How do we use this personal data?

We collect the following  personal data from users of the service:

  • Name
  • Email address
  • Organisation
  • Organisational affiliation
  • Date and time of a visit to the service website
  • Funding or grants awarded

The data controller will use your personal data for the following purposes:

  • To publicly publish information to facilitate scientific research
  • To better understand the needs of the users and guide future improvements of the service

4. Who will have access to your personal data?

The personal data will be disclosed to:

  • Authorised staff in the data controller’s institutions acting on behalf of the Human Cell Atlas Project.

5. Will your personal data be transferred to third countries (i.e. countries not part of EU/EEA) and/or international organisations?

Personal data is transferred to the following organisation based in third countries and that provide the service on behalf of the Human Cell Atlas Project:

Chan Zuckerberg Initiative
Chan Zuckerberg Initiative, 555 University Ave, Palo Alto, CA 94301, United States.

University of California, Santa Cruz
University of California, Santa Cruz, 1156 High Street, Santa Cruz, CA 95064, United States.

Broad Institute
Broad Institute, 415 Main Street, Cambridge, MA 02142, United States.

There are no personal data transfers to international organisations. However, EMBL as a joint controller of this service is an international organisation. Further details on EMBL’s data protection principles are accessible here

6. How long do we keep your personal data?

Any personal data not directly obtained from you will be retained even after the service is no longer running. The data controllers will keep the personal data for the minimum amount of time possible to ensure legal compliance and the possibility to undergo internal and external audits.

7. The joint Data Controllers provide these rights regarding your personal data

You have the right to:

  1. Not be subject to decisions based solely on an automated processing of data (i.e. without human intervention) without you having your views taken into consideration.
  2. Request at reasonable intervals and without excessive delay or expense, information about the personal data processed about you. Under your request we will inform you in writing about, for example, the origin of the personal data or the preservation period.
  3. Request information to understand data processing activities when the results of these activities are applied to you.
  4. Object at any time to the processing of your personal data unless we can demonstrate that we have legitimate reasons to process your personal data.
  5. Request free of charge and without excessive delay rectification or erasure of your personal data if we have not been processing it respecting the data protection policies of the respective controllers.

It must be clarified that rights 4 and 5 are only available whenever the processing of your personal data is not necessary to:  

  • Comply with a legal obligation.
  • Perform a task carried out in the public interest.
  • Exercise authority as a data controller.
  • Archive for purposes in the public interest, or for historical research purposes, or for statistical purposes.
  • Establish, exercise or defend legal claims.
Published at:
July 5, 2018 - 23:32