Privacy notice for HEREDITARY's Data Management Plan (DMP)
This Privacy notice explains what personal data is collected by the specific EMBL-EBI service you are requesting, for what purposes, how it is processed, and how we keep it secure.
Note that this service collects personal data directly provided by the user, and also collects personal data from users that is provided by other organisations.
Who controls your personal data and how to contact us?
The EMBL data controller's contact details are:
Rolf Apweiler and Ewan Birney, EMBL-EBI Directors
Email: data-controller@ebi.ac.uk
EMBL-EBI, Wellcome Genome Campus, CB10 1SD Hinxton, Cambridgeshire, UK.
The EMBL Data Protection Officer's contact details are:
EMBL Data Protection Officer
Email: dpo@embl.org
EMBL Heidelberg, Meyerhofstraße 1, 69117 Heidelberg, Germany
Which is the lawful basis for processing your personal data?
Processing your personal data is necessary for our legitimate interest of delivering a service that provides broader societal benefits.
What personal data do we collect? How do we use this personal data?
We collect the following personal data:
We will use the personal data:
What personal data is provided by other organisations? How do we use this personal data?
HEREDITARY Project provides the following personal data:
And it is used to:
Who will have access to the personal data provided by other organisations?
The personal data will be disclosed to:
- Other organisations that together with EMBL-EBI provide the service.
- Service providers which EMBL-EBI relies on to provide the service.
- Other users of the service.
Will your personal data be transferred to third countries (i.e. countries not part of EU/EAA) and/or international organisations?
There are no personal data transfers to third countries or to international organisations.
How long do we keep your personal data?
Any personal data directly obtained from you will be retained as long as the service is live, even if you stop using the service. We will keep the personal data for the minimum amount of time possible to ensure legal compliance and to facilitate internal and external audits if they arise.
Data will be kept in the Data Management Plan (DMP) of the project at the very least during the duration of the project (4 years).
Personal data defined as traffic and location data, such as IP address (and other identifiers enabling the identification of the communication source and target) and other unique identifiers applied by individual services of DSW are deleted after 18 month
Any personal data not directly obtained from you will be retained even after the service is not longer running running. EMBL-EBI will keep the personal data for the minimum amount of time possible to ensure legal compliance and the possibility to undergo internal and external audits.
Data will be kept in the Data Management Plan (DMP) of the project at the very least during the duration of the project (4 years)
Your rights regarding your personal data
You have the right to:
- Not be subject to decisions based solely on an automated processing of data (i.e. without human intervention) without you having your views taken into consideration.
- Request at reasonable intervals and without excessive delay or expense, information about the personal data processed about you. Under your request we will inform you in writing about, for example, the origin of the personal data or the preservation period.
- Request information to understand data processing activities when the results of these activities are applied to you.
- Object at any time to the processing of your personal data unless we can demonstrate that we have legitimate reasons to process your personal data.
- Request free of charge and without excessive delay rectification or erasure of your personal data if we have not been processing it respecting the EMBL Internal Policy for Data Protection.
It must be clarified that rights 4 and 5 are only available whenever the processing of your personal data is not necessary to:
- Comply with a legal obligation.
- Perform a task carried out in the public interest.
- Exercise authority as a data controller.
- Archive for purposes in the public interest, or for historical research purposes, or for statistical purposes.
- Establish, exercise or defend legal claims.