Data protection: Privacy notice for EMBL-EBI's public website

Find out what personal data is collected by the specific EMBL-EBI service you are requesting and for what purposes, as well as how your data are processed and kept secure.

Privacy notice for GWAS Catalog Submissions email based

This Privacy notice explains what personal data is collected by the specific EMBL-EBI service you are requesting, for what purposes, how it is processed, and how we keep it secure.

Note that this service collects personal data directly provided by the user, and also collects personal data from users that is provided by other organisations.

Who controls your personal data and how to contact us?

The EMBL data controller's contact details are:

Rolf Apweiler and Ewan Birney, EMBL-EBI Directors
Email: data-controller@ebi.ac.uk
EMBL-EBI, Wellcome Genome Campus, CB10 1SD Hinxton, Cambridgeshire, UK.

The EMBL Data Protection Officer's contact details are:

EMBL Data Protection Officer
Email: dpo@embl.org
EMBL Heidelberg, Meyerhofstraße 1, 69117 Heidelberg, Germany

Which is the lawful basis for processing your personal data?

We need your consent to process your personal data. If you do not consent to us processing your personal data, we will not be able to provide you access to the service or we will only provide you a subset of functionalities available within the service.

What personal data do we collect? How do we use this personal data?

We collect the following personal data:

Name
Email address
ORCID
Organisation
Organisational affiliation
Business address
Funding or grants awarded
Date and time when the support request was sent

We will use the personal data:

To provide the user access to the service
To publicly publish information to facilitate scientific research

What personal data is provided by other organisations? How do we use this personal data?

NCBI NLM provides the following personal data:

Name
Email address
ORCID
Organisation
Organisational affiliation
Business address
Funding or grants awarded

And it is used to:

To publicly publish information to facilitate scientific research

EuropePMC provides the following personal data:

Name
Email address
ORCID
Organisation
Organisational affiliation
Business address
Funding or grants awarded

And it is used to:

To publicly publish information to facilitate scientific research

Who will have access to the personal data provided by other organisations?

The personal data will be disclosed to:

Will your personal data be transferred to third countries (i.e. countries not part of EU/EAA) and/or international organisations?

Personal data is transferred to the following organisation based in a third country and that together with EMBL-EBI provide the service:

NIH/NHGRI
5635 FISHERS LANE
Bethesda, MD 20852

United States

There are no personal data transfers to international organisations.

How long do we keep your personal data?

Any personal data directly obtained from you will be retained even if the service is withdrawn. We will keep the personal data for the minimum amount of time possible to ensure legal compliance and to facilitate internal and external audits if they arise.
Any personal data not directly obtained from you will be retained even after the service is not longer running running. EMBL-EBI will keep the personal data for the minimum amount of time possible to ensure legal compliance and the possibility to undergo internal and external audits.

Your rights regarding your personal data

You have the right to:

It must be clarified that rights 4 and 5 are only available whenever the processing of your personal data is not necessary to:

Published at: Friday, November 25, 2022 - 17:34